tag:blogger.com,1999:blog-3917482108825690586.post3869319373206654445..comments2018-01-13T00:54:15.291-08:00Comments on today is the Present: A Brutal Killer of Children - Spinal Muscular Atrophy Type Itoday is the presenthttp://www.blogger.com/profile/11790507603050020950noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-3917482108825690586.post-14553583745871135412009-01-18T11:54:00.000-08:002009-01-18T11:54:00.000-08:00Thank you for your post, and your sweet comments o...Thank you for your post, and your sweet comments on my blog. I have not had a chance to get around to emailing you, but I intend to as I feel we share a special bond! I shared a wonderful week with my family as we Celebrated Case's life last Saturday. I think he and David are probably playing together in heaven! Much love,<BR/>RobynRobynhttps://www.blogger.com/profile/17870767505512215918noreply@blogger.comtag:blogger.com,1999:blog-3917482108825690586.post-91795491675206516462009-01-10T06:43:00.000-08:002009-01-10T06:43:00.000-08:00I receive Google Alerts for SMA (Jeffrey is our ow...I receive Google Alerts for SMA (Jeffrey is our own angel) and just read your blog post. I am so sorry to hear about David and Case.<BR/><BR/>Since you would like to help spread awareness, as we all do, I thought you might like to share the link to the online petition to garner Congressional support for the SMA Treatment Acceleration Act - http://www.petitiontocuresma.com/ .<BR/><BR/>Also, there are several wonderful groups for SMA families, along with some very special memorials. If you're interested in learning about them so you can post the links, please don't hesitate to contact me!<BR/><BR/>Helen Baldwin<BR/>jeffreyb@skybest.comAnonymousnoreply@blogger.com