Thank you to those of you who have checked in to see what we know about whatever is wrong with me. I met with the neuromuscular specialist yesterday and heard the excellent news that it is not neuromuscular so that rules out ALS, PLS and MDA (SMA).
The bad news is we still do not know what is wrong.
However, the good news is a wonderful Christmas present as that was my greatest fear.
We will continue to wait. Upon seeing my records I learned that there are strong suspicions on the part of my neuro that this is Multiple Sclerosis and if so, time will tell. In the meantime, I am thankful that I can still walk :) and do not have a neuromuscular disease!
Many thanks and I wish you all a wonderful Christmas!! We plan to have an awesome one here!!
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3 comments:
Well, one more thing to NOT worry about, YAY! Keeping fingers crossed for definitive answers and for you to feel healthy with not too much pain. xo
I am glad to hear that it is not something that will take your life early. I am sorry you have to deal with it at all though. Hopefully if it is MS, you can find a good treatment that works to keep you functioning at full capacity! Prayers coming for you!
My lesions come and go- which my MS specialist says is typical for early stages. I am doing great on the daily injections, etc. Thanks for commenting on my MS blog. You are in my prayers- not knowing is often the hardest (and most expensive) part of this whole thing!
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