My nephew, David, was diagnosed with Spinal Muscular Atrophy Type I (also known as Werdnig-Hoffmann disease) at the age of four months and passed away at nine and a half months. Most everyone who knows me knows that. Tonight I want to attempt to raise awareness by sharing about it.
SMA basically causes muscles to waste away and robs people of their ability to move and eventually, breathe. Their minds are just as strong as ever, but their bodies fail. THERE IS NO CURE. It is best defined by going to this site: http://www.mda.org/publications/fa-sma-qa.html
Tonight I want to pay tribute to another little boy who passed away yesterday of SMA. Here is a link to his caring bridge page:
Please think of and pray for this family as they grieve. Please ask that they are enveloped with a peace that passes all understanding.